On the one hand, I desperately don't want her to have LPLD. I want her to chow down on macaroni and cheese when she's had a hard day, eat a big grilled cheese sandwich when it's cold outside, have a stash of good chocolate that she nibbles when she feels like it, and eat big bowls of ice cream. I want her to never be hospitalized. I want her to get pregnant and have babies safely and easily and healthily.
But there's a tiny part of my heart that doesn't want Monica to be alone in all this. She is so attached to Teresa, no one can make Teresa laugh like Monica can. Wouldn't it be nice for Monica, alone in so many ways with this one-in-a-million disease, to have someone to share her pain with? If there's a baby who has to have LPLD, wouldn't I want him or her to be in my family, where we know this disease and it's not such a big deal? Wouldn't it be great for Monica to have not only another sister, but a sister in her illness, who can share trials and recipes and hugs, even when Luke and I are gone?
We knew we were going to test Teresa soon and sometimes I would ask Monica to pray with me that Teresa didn't have it. Monica was definitely torn on praying for what was best for her sister's health versus wanting a friend in her difficulties.
So when I got the results, when I saw Teresa's triglycerides were >1000, too much to count, I felt so guilty. So guilty to wish this on my baby with even the tiniest corner of my heart. So guilty for wanting to have more babies at all with this terrible gene in my blood, even playing the odds of a 1 in 4 chance, was I just being greedy?
|The latest patient with LPLD|