Given my background as a mom with two kids with this deficiency, as a well as a board certified family physician, my goal is to make lipoprotein lipase deficiency / Fredrickson's type I hyperlipidemia / Buerger-Gruetz syndrome more understandable and liveable for other families.
Wednesday, November 11, 2015
Living with LPLD is going live!
I've thought about this for a long time, and I'm finally acting on it. The mission of this blog is to help other patients and parents who have lipoprotein lipase deficiency in their genes. I want to provide support, recipes, my interpretations of medical research, and discussions for the difficulties of the day-to-day living with such a rare disease. Maybe I can even help you to communicate with your doctor better! Remember, I can't give you medical advice, so the bottom line will always be to talk with your doctor.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment