My eldest daughter just had her annual labs done. Her triglyceride control has been so good, and blood draws so traumatic, that we just check them annually. It was remarkable first of all because it was the best she has ever handled the blood draw. We were able to obtain some numbing cream and tegaderm bandages to place in both antecubital fossas (where they draw blood, the inner elbow area) so that the actual needle stick wouldn't hurt on her skin. We even showed her how well it worked the day before, so she could see how numb her skin went (she exclaimed, "my skin doesn't feel like my skin!"). We talked up how brave she was, and other examples of bravery, and watched some Winnie the Pooh during the draw, and talked about how silly it would be if honeybees could really laugh. And then it was over! And she got a pretzel and a hot chocolate (steamed skim milk with three pumps of nearly non fat chocolate syrup) from the local coffee shop to celebrate her bravery. HURRAY!!
And then we got the results: 300! I hate to sound like a jerk when there's many who would kill for such a good lab number with LPLD, but it really makes me nervous, it's so low. I've always been more on the edge of, get it as close to 1000 without going over or putting her into pancreatitis, to make sure she's getting sufficient fat-soluble vitamins and fats that she can grow and develop well. But she's growing so well, both height and weight, and thriving in school, that I guess it's OK! Wow. The only changes we've made recently is incorporating MCT oil instead of coconut oil into baked goods, and encouraging exercise through paying her a quarter for every quarter mile she walks, outside or on a treadmill. Nothing drastic. Maybe those changes have nothing to do with her low levels, maybe she's just bigger and getting a few more LPL enzymes with her bigger size, and so better able to process triglycerides in her limited way?? We're certainly not going to change her diet much - still all skim milk, fat free cheeses, no bacon or sausage, and no chocolate (except chocolate syrup and Snackwell's cookies). But maybe we'll let her eat more salmon, not stress so much about how many tortillas she can have, and not stress about how much olive oil my husband likes to add when stir frying. Next up: my youngest daughter's blood draw. Just as traumatic, and worrisome, but we need to get it done!
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