tag:blogger.com,1999:blog-4341693787587414203.post5374717207336590499..comments2023-02-10T01:00:38.981-06:00Comments on (Living with) Lipoprotein Lipase Deficiency: The Dreaded Blood Draw...Monica's Momhttp://www.blogger.com/profile/15455559559720813955noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-4341693787587414203.post-9676829011874379542017-08-01T22:51:54.000-05:002017-08-01T22:51:54.000-05:00Thank you for sharing such wonderful information! ...Thank you for sharing such wonderful information! Keep a healthy life by consuming healthy food and doing exercise regularly is the best healthy formula.<br /><br />Health Jobshttp://www.medicaljobsaustralia.com/About.aspxnoreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-19061226627576802402016-06-01T17:57:15.415-05:002016-06-01T17:57:15.415-05:00Huh, yea, youtube would be a way to show her what ...Huh, yea, youtube would be a way to show her what actually happens! I might try that!Monica's Momhttps://www.blogger.com/profile/15455559559720813955noreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-6408884078041265352016-05-26T21:57:59.472-05:002016-05-26T21:57:59.472-05:00For my daughter the talking and prep beforehand is...For my daughter the talking and prep beforehand is key. It's true-everyone is different! We showed her a youtube video of a college nursing program showing how to draw blood. I pointed out when the needle went in, how the patient "responded"-calm- and how quick it was, how the blue band went on and then off, etc. This was our easiest blood draw to date and she is so proud of how brave she was. Lets cross our fingers for the next one! Melissanoreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-67445909357475555392016-05-25T04:28:10.376-05:002016-05-25T04:28:10.376-05:00I have stories about blood draws. Will you be in C...I have stories about blood draws. Will you be in Chicago?<br />I NEVER WATCH! I always turn my head and I always get a bit panicky before. And I HATE chatty stickers. Shut up and do your job!<br /><br />Some of the WORST things to say:<br />Ooh. You have bad veins. <br />I'm not sure where I can go w this. <br />Let me see your other arm. <br /><br />And if you can hit the vein first time, DO NOT dig around in MY arm!!!! I'm doing you a favor by allowing you to take my blood. Don't mess w me!<br /><br />It's taken 45 years to find my own voice but I will NOT allow anyone to draw blood if they are incompetent. They can practice on someone else. But not me. I've been through enough. <br /><br />Fight for your girl!!!<br />I'm so glad you wait for the best phlebotomist. It's worth it for her. She needs that. And I think the best way is for you to hold her, hugging her to your chest and let them take her arm while you keep holding her. Let them do whatever they need to in order to get the blood while you provide the live and comfort and support that SHE needs!!! Maybe that will help her to develop a better tolerance. <br /><br />I was raised in the era of medical community is god and they were in charge and no patient had rights. My mom had to fight for me all the time at Hopkins and NIH. <br />Anonymoushttps://www.blogger.com/profile/15929936203175532307noreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-20449694299816483322016-05-25T04:16:46.916-05:002016-05-25T04:16:46.916-05:00I was born in 1960 and there were no 'low fat/...I was born in 1960 and there were no 'low fat/no fat' food options like today so my mom had to be creative. The BEST thing is that I was a child and so there are a lot of things I never ate and never developed a taste for!<br /><br />Dry cottage cheese was a staple in my diet and it was so crumbly that my mom would add a bit of skim milk to it so it would stay together easier to eat. She also added tomatoes to it. <br /><br />They quit making dry cottage cheese in my area about 15 years ago. I really miss it. <br />When we took a family RV trip out west in 2004 I found it in Kansas. <br />And one of my daughters lived in Denver for a while. I found it there. It was in a bag. Not in a carton. My last trip there I bought 10 bags of it and carried on a small cooler in my flight home!<br />I was in heaven. ❤️<br /><br />I still eat a LOT of cottage cheese. It is my comfort food. <br /><br /><br />Anonymoushttps://www.blogger.com/profile/15929936203175532307noreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-18690692461855350202016-05-24T11:52:08.367-05:002016-05-24T11:52:08.367-05:00Ooh! Dry cottage cheese sounds good. Would you e...Ooh! Dry cottage cheese sounds good. Would you eat is plain or put it on something? One of my favorite web sites has a recipe for it, too: http://www.culturesforhealth.com/dry-curd-cottage-cheeseMonica's Momhttps://www.blogger.com/profile/15455559559720813955noreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-43201439508677335432016-05-24T11:48:12.760-05:002016-05-24T11:48:12.760-05:00Thanks Sandy! I was about to ask to hear more of ...Thanks Sandy! I was about to ask to hear more of your story, but I just read it on the Facebook FCS support group! I would really love to hear more about how your pregnancies went. I am so nervous about my girls growing up and wanting families of their own! And I loved your simple description of your meals: simple and repetitive. And that's OK. I have no idea what dry cottage cheese is, but I'll look into it...Monica's Momhttps://www.blogger.com/profile/15455559559720813955noreply@blogger.comtag:blogger.com,1999:blog-4341693787587414203.post-4838856224678895512016-05-24T05:40:49.517-05:002016-05-24T05:40:49.517-05:00Bless you Momma!
I myself am a Type 1 Hyperlipopr...Bless you Momma!<br /><br />I myself am a Type 1 Hyperlipoprotenemia patient diagnosed at age 1, now 55.<br /><br />I'm continuing to wait until the blood draws don't bother me! Ive had it all. And was a research patient my entire childhood.<br /><br />I've said it many times - I'm sure my mom had it much worse than I did. Being the parent and watching helplessly is the worst. <br /><br />SandyAnonymoushttps://www.blogger.com/profile/15929936203175532307noreply@blogger.com